Item Type | Name |
Concept
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Acute Disease
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Concept
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Arterial Occlusive Diseases
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Concept
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Autoimmune Diseases
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Concept
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Cardiovascular Diseases
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Concept
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Hematologic Diseases
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Concept
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Hemoglobin SC Disease
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Concept
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Kidney Diseases
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Concept
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Lung Diseases
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Concept
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Stomatognathic Diseases
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Concept
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Retinal Diseases
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Concept
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Vascular Diseases
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Concept
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Disease Progression
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Concept
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Disease Management
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Concept
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Genetic Predisposition to Disease
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Academic Article
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Peer Mediated Groups:: Nonpharmacologic Management of Pain for and By Those with Sickle Cell Disease.
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Academic Article
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COVID-19 in hospitalized adult patients with sickle cell disease: A 2020 US cohort using Cerner Real-World Data? (CRWD).
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Academic Article
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Health Care Utilization by Adolescent/Young Adult Patients With Sickle Cell Disease in Delaware.
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Academic Article
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Evidence-Based Minireview: How to utilize new therapies for sickle cell disease.
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Grant
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Improving Access to Hydroxyurea for Adults with Sickle Cell Disease
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Grant
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Sickle Cell Disease: First steps toward understanding barriers to care for adults
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Academic Article
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Treatment of Acute Pain in Adults With Sickle Cell Disease in an Infusion Center Versus the Emergency Department : A Multicenter Prospective Cohort Study.
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Academic Article
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Efficacy and Safety of Ledipasvir/Sofosbuvir for the Treatment of Chronic Hepatitis C in Persons With Sickle Cell Disease.
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Academic Article
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An evaluation of cardiopulmonary endurance and muscular strength in adults living with sickle cell disease.
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Academic Article
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Patent foramen ovale in patients with sickle cell disease and stroke: case presentations and review of the literature.
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Academic Article
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Marijuana use and health behaviors in a US clinic sample of patients with sickle cell disease.
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Academic Article
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Evidence gaps in the management of sickle cell disease: A summary of needed research.
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Academic Article
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"The Patient Should Have a Choice": Adults with Sickle Cell Disease Advise Integration of Telemedicine into the Comprehensive Sickle Cell Disease Care Model.
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Academic Article
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Depressive and Insomnia Symptoms Sequentially Mediate the Association Between Racism-Based Discrimination in Healthcare Settings and Clinical Pain Among Adults With Sickle Cell Disease.
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Academic Article
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Gaps in the diagnosis and management of iron overload in sickle cell disease: a 'real-world' report from the GRNDaD registry.
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Academic Article
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Quality Metrics and Health Care Utilization for Adult Patients with Sickle Cell Disease.
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Academic Article
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Progestin-only contraception is first line for sickle cell disease: a comment on "Hormonal therapies in females with blood disorders: thrombophilia, thrombosis, hemoglobinopathies, and anemias."
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Academic Article
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Nonmydriatic Ultra-Widefield Fundus Photography in a Hematology Clinic Shows Utility for Screening of Sickle Cell Retinopathy.
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Academic Article
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Kneeling Was the First Step for Sickle Cell Disease.
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Academic Article
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Innovations in Targeted Anti-Adhesion Treatment for Sickle Cell Disease.
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Academic Article
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Sleep Disruption Moderates the Daily Dynamics of Affect and Pain in Sickle Cell Disease.
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Academic Article
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Sickle cell disease and venous thromboembolism: what the anticoagulation expert needs to know.
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Academic Article
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Chronic Opioid Therapy and Central Sensitization in Sickle Cell Disease.
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Academic Article
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Time to recognize an overlooked trait.
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Academic Article
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An Evaluation of Central Sensitization in Patients With Sickle Cell Disease.
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Academic Article
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Short-term air pollution levels and sickle cell disease hospital encounters in South Carolina: A case-crossover analysis.
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Academic Article
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The excess burden of stroke in hospitalized adults with sickle cell disease.
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Academic Article
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The impact of race and disease on sickle cell patient wait times in the emergency department.
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Academic Article
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A Preliminary Investigation of the Underlying Mechanism Associating Daily Sleep Continuity Disturbance and Prescription Opioid Use Among Individuals With Sickle Cell Disease.
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Academic Article
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Sickle Cell Disease.
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Academic Article
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Acceptable, hopeful, and useful: development and mixed-method evaluation of an educational tool about reproductive options for people with sickle cell disease or trait.
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Academic Article
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Self-perceived loss of control and untreated dental decay in African American adults with and without sickle cell disease.
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Academic Article
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Transfusion-transmitted babesiosis in a patient with sickle cell disease undergoing chronic red cell exchange.
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Academic Article
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Managing sickle cell disease and related complications in pregnancy: results of an international Delphi panel.
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Academic Article
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Multiple Levels of Suffering: Discrimination in Health-Care Settings is Associated With Enhanced Laboratory Pain Sensitivity in Sickle Cell Disease.
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Academic Article
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Life after sickle cell disease, is it really uhuru?
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Academic Article
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The Role of Patient-Physician Communication on the Use of Hydroxyurea in Adult Patients with Sickle Cell Disease.
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Academic Article
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Venous thromboembolism in adults with sickle cell disease: a serious and under-recognized complication.
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Academic Article
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Management of sickle cell disease: summary of the 2014 evidence-based report by expert panel members.
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Academic Article
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2019 sickle cell disease guidelines by the American Society of Hematology: methodology, challenges, and innovations.
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Academic Article
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Risk factors for death in 632 patients with sickle cell disease in the United States and United Kingdom.
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Academic Article
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Current Evidence and Rationale to Guide Perioperative Management, Including Transfusion Decisions, in Patients With Sickle Cell Disease.
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Academic Article
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Association of sickle cell trait with chronic kidney disease and albuminuria in African Americans.
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Academic Article
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Disease-Related, Nondisease-Related, and Situational Catastrophizing in Sickle Cell Disease and Its Relationship With Pain.
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Academic Article
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The Economic Burden of End-Organ Damage Among Medicaid Patients with Sickle Cell Disease in the United States: A Population-Based Longitudinal Claims Study.
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Academic Article
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Increased acute care utilization in a prospective cohort of adults with sickle cell disease.
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Academic Article
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Accessible Care with High Patient Satisfaction: Telemedicine Use in Sickle Cell Disease.
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Academic Article
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Clinical and Ophthalmic Factors Associated With the Severity of Sickle Cell Retinopathy.
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Academic Article
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The Association of Clinician Characteristics with their Attitudes Toward Patients with Sickle Cell Disease: Secondary Analyses of a Randomized Controlled Trial.
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Academic Article
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Metabolic syndrome among adults living with sickle cell disease.
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Academic Article
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Blood pressure thresholds for the diagnosis of hypertensive disorders of pregnancy in sickle cell disease.
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Academic Article
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Randomized phase 2 study of GMI-1070 in SCD: reduction in time to resolution of vaso-occlusive events and decreased opioid use.
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Academic Article
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Hydroxycarbamide exposure and ovarian reserve in women with sickle cell disease in the Multicenter Study of Hydroxycarbamide.
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Academic Article
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Mortality and Access to Kidney Transplantation in Patients with Sickle Cell Disease-Associated Kidney Failure.
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Academic Article
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Attitudes toward clinical trials among patients with sickle cell disease.
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Academic Article
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Expecting more: the case for incorporating fertility services into comprehensive sickle cell disease care.
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Academic Article
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The association between sickle cell disease and dental caries in African Americans.
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Academic Article
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Health care provider attitudes toward patients with acute vaso-occlusive crisis due to sickle cell disease: development of a scale.
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Academic Article
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A prospective quality improvement initiative in adult hemophagocytic lymphohistiocytosis to improve testing and a framework to facilitate trigger identification and mitigate hemorrhage from retrospective analysis.
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Academic Article
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Sickle Cell Disease: New Approaches for an Old Disease.
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Academic Article
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Utility of the Montreal Cognitive Assessment as a Screening Test for Neurocognitive Dysfunction in Adults with Sickle Cell Disease.
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Academic Article
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Euvolemic automated transfusion to treat severe anemia in sickle cell disease patients at risk of circulatory overload.
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Academic Article
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Predictors of acute care utilization and acute pain treatment outcomes in adults with sickle cell disease: The role of non-hematologic characteristics and baseline chronic opioid dose.
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Academic Article
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Effect of Free Dental Services on Individuals with Sickle Cell Disease.
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Academic Article
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A Phase 3 Trial of l-Glutamine in Sickle Cell Disease.
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Academic Article
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A preliminary study of psychiatric, familial, and medical characteristics of high-utilizing sickle cell disease patients.
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Academic Article
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Daily Opioid Use Fluctuates as a Function of Pain, Catastrophizing, and Affect in Patients With Sickle Cell Disease: An Electronic Daily Diary Analysis.
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Academic Article
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Identifying Clinical and Research Priorities in Sickle Cell Lung Disease. An Official American Thoracic Society Workshop Report.
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Academic Article
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"Buprenorphine, It Works so Differently": Adults with Sickle Cell Disease Describe Transitioning to Buprenorphine for Treatment of Chronic Pain.
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Academic Article
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A community-centered approach to sickle cell disease and clinical trial participation: an evaluation of perceptions, facilitators, and barriers.
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Academic Article
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Mortality rates and age at death from sickle cell disease: U.S., 1979-2005.
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Academic Article
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The burden of emergency department use for sickle-cell disease: an analysis of the national emergency department sample database.
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Academic Article
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Severe Maternal Morbidity and Mortality in Sickle Cell Disease in the National Inpatient Sample, 2012-2018.
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Academic Article
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Hospital self-discharge among adults with sickle-cell disease (SCD): associations with trust and interpersonal experiences with care.
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Academic Article
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Impact of a dedicated infusion clinic for acute management of adults with sickle cell pain crisis.
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Academic Article
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Provider barriers to hydroxyurea use in adults with sickle cell disease: a survey of the Sickle Cell Disease Adult Provider Network.
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Academic Article
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Low rates of transfusion-transmitted infection screening in chronically transfused adults with sickle cell disease.
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Academic Article
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Women with sickle cell disease report low knowledge and use of long acting reversible contraception.
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Academic Article
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Patent foramen ovale in adults with sickle cell disease and stroke.
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Academic Article
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The Montreal cognitive assessment as a cognitive screening tool in sickle cell disease: Associations with clinically significant cognitive domains.
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Academic Article
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Estimated Life Expectancy and Income of Patients With Sickle Cell Disease Compared With Those Without Sickle Cell Disease.
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Academic Article
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Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects.
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Academic Article
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Hydroxyurea for sickle cell disease: a systematic review for efficacy and toxicity in children.
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Academic Article
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Religious coping and hospital admissions among adults with sickle cell disease.
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Academic Article
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Hospitalization for pain in patients with sickle cell disease treated with sildenafil for elevated TRV and low exercise capacity.
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Academic Article
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The epidemiology, evaluation and treatment of stroke in adults with sickle cell disease.
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Academic Article
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Developmental disorders in children born to women with sickle cell disease: A report from the Boston Birth Cohort.
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Academic Article
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National trends in hydroxyurea and opioid prescribing for sickle cell disease by office-based physicians in the United States, 1997-2017.
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Academic Article
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The Complex Association of Daily Opioid Dose with Visits for Pain in Sickle Cell Disease: Tolerance or Treatment-Refractory Pain?
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Academic Article
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The five key things you need to know to manage adult patients with sickle cell disease.
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Academic Article
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Improving Inpatient Care for Individuals with Sickle Cell Disease Using the Project ECHO Model.
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Academic Article
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Preliminary evidence that hydroxyurea is associated with attenuated peripheral sensitization in adults with sickle cell disease.
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Academic Article
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Natural history of blood pressure in sickle cell disease pregnancy.
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Academic Article
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Quantitative sensory testing and pain-evoked cytokine reactivity: comparison of patients with sickle cell disease to healthy matched controls.
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Academic Article
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GRNDaD: big data and sickle cell disease.
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Academic Article
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Mental health, pain and likelihood of opioid misuse among adults with sickle cell disease.
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Academic Article
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Challenges in the management of the transgender patient with sickle cell disease.
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Academic Article
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Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: Current practices and research priorities.
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Academic Article
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American Society of Hematology 2019 guidelines for sickle cell disease: cardiopulmonary and kidney disease.
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Academic Article
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Need for Specialized Centers to Provide Acute Care to Adults with Sickle Cell Disease.
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Academic Article
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High prevalence and correlates of low bone mineral density in young adults with sickle cell disease.
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Academic Article
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Converting adults with sickle cell disease from full agonist opioids to buprenorphine: A reliable method with safety and early evidence of reduced acute care utilization.
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Academic Article
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Primary Care Providers' Comfort Levels in Caring for Patients with Sickle Cell Disease.
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Academic Article
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Comparison of US Federal and Foundation Funding of Research for Sickle Cell Disease and Cystic Fibrosis and Factors Associated With Research Productivity.
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Academic Article
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Examining the characteristics and beliefs of hydroxyurea users and nonusers among adults with sickle cell disease.
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Academic Article
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Perceived discrimination, patient trust, and adherence to medical recommendations among persons with sickle cell disease.
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Academic Article
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Hydroxyurea for the treatment of sickle cell disease.
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Academic Article
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Terminology for Retinal Findings in Sickle Cell Disease Research: A Scoping Review.
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Academic Article
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An unequal burden: poor patient-provider communication and sickle cell disease.
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Academic Article
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Biopsychosocial Factors Associated With Pain and Pain-Related Outcomes in Adults and Children With Sickle Cell Disease: A Multivariable Analysis of the GRNDaD Multicenter Registry.
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Academic Article
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Family planning needs of young adults with sickle cell disease.
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Academic Article
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The course and correlates of high hospital utilization in sickle cell disease: Evidence from a large, urban Medicaid managed care organization.
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Academic Article
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Examining the effectiveness of hydroxyurea in people with sickle cell disease.
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Academic Article
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Prediction of onset and course of high hospital utilization in sickle cell disease.
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Academic Article
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Problematic hospital experiences among adult patients with sickle cell disease.
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Academic Article
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Evaluation of a train-the-trainer workshop on sickle cell disease for ED providers.
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Academic Article
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COVID-19 outcomes in sickle cell disease and sickle cell trait.
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Academic Article
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The association of provider communication with trust among adults with sickle cell disease.
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Academic Article
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Look into my eyes: An unusual first presentation of sickle cell disease.
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Academic Article
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Liver Transplant in Hemoglobin SC Disease and Autoimmune Hepatitis: A Case Report.
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Academic Article
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Perceived discrimination in health care is associated with a greater burden of pain in sickle cell disease.
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Academic Article
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Psychosocial and Clinical Risk Factors Associated with Substance Use in Observational Cohort of Patients with Sickle Cell Disease.
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Academic Article
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A systematic review of barriers and interventions to improve appropriate use of therapies for sickle cell disease.
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Academic Article
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A video-intervention to improve clinician attitudes toward patients with sickle cell disease: the results of a randomized experiment.
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Academic Article
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HLA-haploidentical bone marrow transplantation with posttransplant cyclophosphamide expands the donor pool for patients with sickle cell disease.
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Academic Article
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Riociguat in patients with sickle cell disease and hypertension or proteinuria (STERIO-SCD): a randomised, double-blind, placebo controlled, phase 1-2 trial.
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Academic Article
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Overcoming challenges of venous thromboembolism in sickle cell disease treatment.
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Academic Article
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Comparisons of Severe Maternal Morbidity and Other Adverse Pregnancy Outcomes in Pregnant People With Sickle Cell Disease vs Anemia.
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Academic Article
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Systematic review: Hydroxyurea for the treatment of adults with sickle cell disease.
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Academic Article
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Knowledge of fertility and perception of fertility treatment among adults with sickle cell disease (KNOW FERTILITY).
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Academic Article
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Costs and Impact of Disease in Adults with Sickle Cell Disease: A Pilot Study.
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Academic Article
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Polymerized human Hb use in acute chest syndrome: a case report.
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Academic Article
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Expert consensus on the management of infusion-related reactions (IRRs) in patients with sickle cell disease (SCD) receiving crizanlizumab: a RAND/UCLA modified Delphi panel.
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Academic Article
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COVID-19 mRNA Vaccination Responses in Individuals With Sickle Cell Disease: ASH RC Sickle Cell Research Network Study.
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Academic Article
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Chronic automated red cell exchange therapy for sickle cell disease.
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Academic Article
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Digital Cognitive Behavioral Therapy vs Education for Pain in Adults with Sickle Cell Disease.
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Academic Article
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The use of abstract animations and a graphical body image for assessing pain outcomes among adults with sickle cell disease.
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Academic Article
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Late effects of hemopoietic stem cell transplant for sickle cell disease: monitoring and management.
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Academic Article
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Attitudes and Beliefs Regarding Pain and Discrimination Among Black Adults with Sickle Cell Disease: A Mixed Methods Evaluation of an Adapted Chronic Pain Intervention.
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Academic Article
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Longitudinal outcomes of chronically transfused adults with sickle cell disease and a history of childhood stroke.
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Academic Article
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Clinical effects of dexamethasone among patients with sickle cell disease hospitalized with COVID-19: Outcomes from a single academic health system.
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